@prefix dcterms: . @prefix dcat: . @prefix foaf: . @prefix xsd: . @prefix ldp: . a ; , , , . a ; dcat:keyword "data collection definition"@en, "personal"@en; , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ; dcterms:title "BCFR- Personal information | DCD"@en . a ; "number"; "patient_code"@en; "Patient code"@en; ; dcterms:description "Patient code is a unique numerical identifier assigned to each patient in the registry."@en . a ; "number"; "bmi"@en; "BMI"@en; ; dcterms:description "BMI (Body Mass Index) is a value derived from the weight and height of the patient, used to assess body composition."@en . a ; "number"; "parenthood_this_year"@en; "Parenthood this year"@en; ; dcterms:description "Parenthood this year indicates whether the patient became a parent during the current year."@en . a ; "number"; "year_of_collection"@en; "Year of collection"@en; ; dcterms:description "Year of collection represents the calendar year in which data was collected for each patient."@en . a ; "number"; "CD_PREGY_CURR_Y"@en; "Pregnancy this year"@en; ; dcterms:description "Pregnancy this year indicates whether the patient was pregnant during the current year."@en . a ; "boolean"; "deceased"@en; "Deceased?"@en; ; dcterms:description "Deceased? indicates whether the patient is deceased (yes/no)."@en . a ; "date"; "date_of_death"@en; "Date of death"@en; ; dcterms:description "Date of death is the date when the patient passed away."@en . a ; "number"; "place_of_residence"@en; "Place of residence"@en; ; dcterms:description "Place of residence refers to the postal code of the commune where the patient lives."@en . a ; "string"; "country_of_residence"@en; "Country of residence"@en; ; dcterms:description "Country of residence indicates the country where the patient resides."@en . a ; "number"; "order_in_the_family"@en; "Order in the family"@en; ; dcterms:description "Order in the family indicates the position of the patient among siblings in the family (e.g., first-born, second-born)."@en . a ; "string"; "country_of_origin_mother"@en; "Country of origin mother"@en; ; dcterms:description "Country of origin mother indicates the country of origin of the patient's mother, only available in special request."@en . a ; "number"; "height_father_cm"@en; "Height father (cm)"@en; ; dcterms:description "Height father (cm) is the height of the patient's father measured in centimeters."@en . a ; "string"; "country_of_origin_father"@en; "Country of origin father"@en; ; dcterms:description "Country of origin father indicates the country of origin of the patient's father, only available on special request."@en . a ; "boolean"; "height_father_measured"@en; "(Height father) measured"@en; ; dcterms:description "(Height father) measured indicates whether the height of the patient's father was measured (yes/no)."@en . a ; "number"; "height_mother_cm"@en; "Height mother (cm)"@en; ; dcterms:description "Height mother (cm) is the height of the patient's mother measured in centimeters."@en . a ; "number"; "rizivinamicode_of_the_treating_physician"@en; "RIZIV/INAMI-code of the treating physician"@en; ; dcterms:description "RIZIV/INAMI-code of the treating physician is a unique identifier for the physician responsible for treating the patient, used within the Belgian healthcare system."@en . a ; "boolean"; "height_mother_measured"@en; "(Height mother) measured"@en; ; dcterms:description "(Height mother) measured indicates whether the height of the patient's mother was measured (yes/no)."@en . a ; "string"; "cause_of_death"@en; "Cause of death"@en; ; dcterms:description "Cause of death specifies the reason or cause of the patient's death."@en . a ; "number"; "weight"@en; "Weight (kg)"@en; ; dcterms:description "Weight (kg) represents the weight measured for the patient in kilograms at the last consultation"@en . a ; "number"; "height"@en; "Height (cm)"@en; ; dcterms:description "Height (cm) represents the height measured for the patient in centimeters at the last consultation"@en . a ; "number"; "CD_PREGY_STA"@en; "Pregnancy status"@en; ; dcterms:description "Pregnancy status specifies additional details about the patient's pregnancy (including reason for stop)."@en . a ; "number"; "child_birth_month"@en; "Child birth month"@en; ; dcterms:description "Child birth month indicates the month in which the patient's child was born/adopted."@en . a ; "number"; "child_birth_year"@en; "Child birth year"@en; ; dcterms:description "Child birth year indicates the year in which the patient's child was born/adopted."@en . a ; "boolean"; "informed_consent_signed"@en; "Confirmation of signed informed constent"@en; ; dcterms:description "Confirmation of signed informed consent indicates whether the patient has signed a document confirming their consent to participate in the registry."@en . a ; "number"; "school_status"@en; "School status"@en; ; dcterms:description "School status specifies the current status of the patient regarding their education or schooling."@en . a ; "number"; "patient_works"@en; "Patient works"@en; ; dcterms:description "Patient works indicates whether the patient has a professionnal activity."@en . a ; "string"; "percentage_work"@en; "Percentage (work)"@en; ; dcterms:description "Percentage (work) indicates if patient is working part- or full-time."@en . a ; "number"; "additional_child_allowance"@en; "Additional child allowance"@en; ; dcterms:description "Additional child allowance indicates whether the patient receives increased amount of the child-related financial support."@en . a ; "number"; "integration_support"@en; "Integration support"@en; ; dcterms:description "Integration support indicates whether the patient receives the governmental support for integration."@en . a ; "number"; "disability_allowance"@en; "Disability allowance"@en; ; dcterms:description "Disability allowance indicates whether the patient receives financial support from the social security due to prolonged sick leave."@en . a ; "number"; "preferential_tariff"@en; "Preferential tariff"@en; ; dcterms:description "Preferential tariff indicates whether the patient benefits from the governmental preferential tariff."@en . a ; dcat:keyword "data collection definition"@en, "medical"@en; , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ; dcterms:title "BCFR - Medical information | DCD"@en . a ; "date"; "DT_CTR_STP_2"@en; "Restop date Blinded trial"@en; ; dcterms:description "Restop date Blinded trial indicates the date when the blinded clinical trial was again stopped or restopped for the patient."@en . a ; "number"; "mycophenolate_mofetil_mmf"@en; "Mycophenolate mofetil (MMF)"@en; ; dcterms:description "Mycophenolate mofetil (MMF) indicates whether the patient is taking mycophenolate mofetil (MMF) as part of their immunosuppressive therapy, for more than 3 months."@en . a ; "string"; "transplant_status"@en; "Transplant status"@en; ; dcterms:description "Transplant status indicates whether the patient has undergone a transplant procedure, including evaluation and put on waiting list."@en . a ; "string"; "type_of_transplant"@en; "Type of transplant"@en; ; dcterms:description "Type of transplant specifies the organ(s) the patient has received."@en . a ; "date"; "DT_CTR_START_3"@en; "Restart2 date Blinded trial"@en; ; dcterms:description "Restart2 date Blinded trial indicates the date when a blinded clinical trial was restarted for the patient a second time."@en . a ; "number"; "CD_CTR_CONTNG_3"@en; "Blinded trial restarted2 ongoing"@en; ; dcterms:description "Blinded trial restarted2 ongoing indicates whether the patient is undergoing the second restarted blinded clinical trial on 31/12 of the year of collection."@en . a ; "string"; "chromosome_1_other"@en; "Chromosome 1 other"@en; ; dcterms:description "Chromosome 1 other provides CFTR mutation(s) otherwise not listed about Chromosome 1 for the patient."@en . a ; "date"; "DT_CTR_STP_3"@en; "Restop2 date Blinded trial"@en; ; dcterms:description "Restop2 date Blinded trial indicates the date when the blinded clinical trial was stopped or restopped for the patient for the second time."@en . a ; "string"; "specify"@en; "Specify other CFTRm"@en; ; dcterms:description "Specify other CFTRm provides additional details or specifications regarding other CFTR modulating therapies for the patient."@en . a ; "number"; "cyclosporine"@en; "Cyclosporine"@en; ; dcterms:description "Cyclosporine indicates whether the patient is taking cyclosporine as part of their immunosuppressive therapy, for more than 3 months."@en . a ; "number"; "tacrolimus"@en; "Tacrolimus"@en; ; dcterms:description "Tacrolimus indicates whether the patient is taking tacrolimus as part of their immunosuppressive therapy, for more than 3 months."@en . a ; "number"; "azathioprine"@en; "Azathioprine"@en; ; dcterms:description "Azathioprine indicates whether the patient is taking azathioprine as part of their immunosuppressive therapy, for more than 3 months."@en . a ; dcat:keyword "data collection definition"@en, "medical interventions"@en, "treatments"@en; , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ; dcterms:title "BCFR - Medical interventions and treatments | DCD"@en . a ; "boolean"; "CD_RECEIVD_TRSP"@en; "Received transplant"@en; ; dcterms:description "Received transplant indicates whether the patient has received a transplant (yes/no)."@en . a ; "number"; "CD_SYSTMC_ANTBIO"@en; "Systemic antibiotics"@en; ; dcterms:description "Systemic antibiotics indicates whether the patient received systemic antibiotics as part of their treatment regimen, and the type (oral and/or intravenous)."@en . a ; "number"; "MS_TREAT_IV"@en; "Nb of iv treatments"@en; ; dcterms:description "Nb of iv treatments indicates the total number of intravenous (IV) antibiotics administered to the patient during the reporting period."@en . a ; "number"; "CD_INHLE_ANTBIO"@en; "Inhaled antibiotics"@en; ; dcterms:description "Inhaled antibiotics indicates whether the patient received antibiotics via inhalation as part of their treatment regimen, for more than 3 months."@en . a ; "number"; "CD_HOM_O2_THERPY"@en; "Home O2-therapy"@en; ; dcterms:description "Home O2-therapy indicates whether the patient received oxygen therapy at home as part of their treatment regimen, including shemla (at night only, day and night, day/on demand), for more than 3 months."@en . a ; "number"; "CD_NIPPV"@en; "Continuous NIPPV (non-invasive positive pressure ventilation)"@en; ; dcterms:description "Continuous NIPPV indicates whether the patient used non-invasive positive pressure ventilation continuously as part of their treatment regimen, and if CPAP and/olr BiPAP."@en . a ; "number"; "CD_INHAL_THERPY"@en; "Inhalation therapy (except antibiotics)"@en; ; dcterms:description "Inhalation therapy (except antibiotics) indicates whether the patient received inhalation therapy as part of their treatment regimen (other than inhaled antibiotics), for more than 3 months."@en . a ; "boolean"; "CD_RECEIVD_LUNG_TRSP"@en; "Received lung transplant"@en; ; dcterms:description "Received lung transplant indicates whether the patient has received a lung transplant (yes/no)."@en . a ; "number"; "CD_MECON_TRTMNT"@en; "Meconium ileus treatment"@en; ; dcterms:description "Meconium ileus treatment indicates the type of treatment received for meconium ileus."@en . a ; "number"; "treatment_for_abpa"@en; "Treatment for ABPA"@en; ; dcterms:description "Treatment for ABPA specifies the specific treatment regimen for Allergic broncho pulmonary aspergillosis (ABPA)."@en . a ; "number"; "CD_PNEUTH_TREAT"@en; "Pneumothorax treatment"@en; ; dcterms:description "Pneumothorax treatment specifies the treatment received by the patient for pneumothorax (collapsed lung)."@en . a ; "number"; "requiring_embolization"@en; "Requiring embolization"@en; ; dcterms:description "Requiring embolization indicates whether the patient required embolization treatment for massive haemoptysis."@en . a ; "number"; "pension"@en; "Pension"@en; ; dcterms:description "Pension indicates whether the patient receives professionnal pension benefits."@en . a ; "number"; "income_support"@en; "Income support"@en; ; dcterms:description "Income support indicates whether the patient receives the governmental support for income."@en . a ; "number"; "CD_DISAB_RECOGN"@en; "Disability recognition requested"@en; ; dcterms:description "Disability recognition requested indicates whether the patient has applied for official recognition of their disability status."@en . a ; "string"; "IDC_PAT"@en; "National registry ID of the patient"@en; ; dcterms:description "National registry ID of the patient is the ID assigned to each patient within the national registry system, serving as a unique identifier."@en . a ; "number"; "MS_DISAB_RECOGN_YR"@en; "Year of disability recognition request"@en; ; dcterms:description "Year of disability recognition request indicates the year in which the patient applied for disability recognition."@en . a ; "number"; "CD_PARK_REQ"@en; "Parking card requested"@en; ; dcterms:description "Parking card requested indicates whether the patient has requested a special parking card due to disability."@en . a ; "number"; "CD_PARK_GRANT"@en; "Parking card granted"@en; ; dcterms:description "Parking card granted indicates whether the patient has been granted a special parking card due to disability."@en . a ; "number"; "CD_DISAB_DECIS"@en; "Decision made"@en; ; dcterms:description "Decision made indicates whether the decision regarding the patient's disability status has been made based on the file or with a consultation."@en . a ; "number"; "CD_DISAB_DECIS_PLC"@en; "Place of decision center"@en; ; dcterms:description "Place of decision center specifies the province where the decision regarding disability status has been processed."@en . a ; "number"; "MS_TOT_PNT"@en; "Total number of points granted (child)"@en; ; dcterms:description "Total number of points granted (child) indicates the total number of points granted for child-related pilars."@en . a ; "number"; "MS_PILAR1"@en; "Pilar 1 (child)"@en; ; dcterms:description "Pilar 1 (child) indicates the points granted under Pilar 1 for child-related disability evaluation."@en . a ; "number"; "MS_PILAR2"@en; "Pilar 2 (child)"@en; ; dcterms:description "Pilar 2 (child) indicates the points granted under Pilar 2 for child-related disability evaluation."@en . a ; "number"; "MS_PILAR3"@en; "Pilar 3 (child)"@en; ; dcterms:description "Pilar 3 (child) indicates the points granted under Pilar 3 for child-related disability evaluation."@en . a ; "number"; "CD_PTM_PRNT"@en; "Part-time by any parent"@en; ; dcterms:description "Part-time by any parent indicates whether any parent of the patient works part-time with a social leave related to their child'situation."@en . a ; "unsignedInt"; "TX_IDC_PAT_INT"@en; "Internal patient ID"@en; ; dcterms:description "Internal patient ID is an internal identifier used within the registry system to uniquely identify patients. Is not transferred to HealthData."@en . a ; "number"; "CD_WRK_DISAB"@en; "Working disability"@en; ; dcterms:description "Working disability indicates whether the patient has a recognized disability affecting their ability to work."@en . a ; "number"; "MS_INDEPNDC_PNT"@en; "Independance - Points (adult)"@en; ; dcterms:description "Independance - Points (adult) indicates the points granted for adult-related benefits or support based on independence criteria."@en . a ; "number"; "MS_DISAB_SECTION1"@en; "Section 1 Movement (adult)"@en; ; dcterms:description "Section 1 Movement (adult) indicates the points granted under Section 1 for adult-related benefits or support."@en . a ; "number"; "MS_DISAB_SECTION2"@en; "Section 2 Cooking (adult)"@en; ; dcterms:description "Section 2 Cooking (adult) indicates the points granted under Section 2 for adult-related benefits or support."@en . a ; "number"; "MS_DISAB_SECTION3"@en; "Section 3 Hygiene (adult)"@en; ; dcterms:description "Section 3 Hygiene (adult) indicates the points granted under Section 3 for adult-related benefits or support."@en . a ; "number"; "MS_DISAB_SECTION4"@en; "Section 4 Household (adult)"@en; ; dcterms:description "Section 4 Household (adult) indicates the points granted under Section 4 for adult-related benefits or support."@en . a ; "number"; "MS_DISAB_SECTION5"@en; "Section 5 Reaction (adult)"@en; ; dcterms:description "Section 5 Reaction (adult) indicates the points granted under Section 5 for adult-related benefits or support."@en . a ; "number"; "MS_DISAB_SECTION6"@en; "Section 6 Communication (adult)"@en; ; dcterms:description "Section 6 Communication (adult) indicates the points granted under Section 6 for adult-related benefits or support."@en . a ; "number"; "CD_DISAB_DURA"@en; "Duration"@en; ; dcterms:description "Duration specifies whether the disability recognition decision has a limited or unlimited duration."@en . a ; "number"; "household_composition"@en; "Household composition"@en; ; dcterms:description "Household composition specifies the composition of the patient's household."@en . a ; "unsignedInt"; "TX_PAT_LAST_NAM"@en; "Name"@en; ; dcterms:description "Name refers to the last name (surname) of the patient. Is not transferred to HealthData"@en . a ; "number"; "number_of_siblings_including_the_patient"@en; "Number of siblings including the patient"@en; ; dcterms:description "Number of siblings including the patient indicates the total number of siblings the patient has, including themselves."@en . a ; "number"; "number_of_siblings_with_cf"@en; "Number of siblings with CF"@en; ; dcterms:description "Number of siblings with CF indicates the number of siblings of the patient who also have cystic fibrosis (CF)."@en . a ; "number"; "number_of_siblings_deceased_from_cf"@en; "Number of siblings deceased from CF"@en; ; dcterms:description "Number of siblings deceased from CF indicates the number of siblings of the patient who have passed away due to cystic fibrosis (CF)."@en . a ; "string"; "general_remark"@en; "General remark"@en; ; dcterms:description "General remark allows for any additional comments or general remarks relevant to the patient's case."@en . a ; "unsignedInt"; "TX_PAT_FIRST_NAM"@en; "First name"@en; ; dcterms:description "First name refers to the first name of the patient. Is not transferred to HealthData."@en . a ; "date"; "DT_PAT_DOB"@en; "Date of birth"@en; ; dcterms:description "Date of birth is the birthdate of the patient. For SCRA purposes, only the year is required (and for children, the month or week based on age)"@en . a ; "string"; "CD_PAT_SEX"@en; "Sex"@en; ; dcterms:description "Sex indicates the gender of the patient."@en . a ; "number"; "cancer"@en; "Cancer"@en; ; dcterms:description "Cancer indicates whether the patient has been diagnosed with cancer."@en . a ; "number"; "diagnosis_confirmed"@en; "Diagnosis confirmed"@en; ; dcterms:description "Diagnosis confirmed indicates whether the clinical diagnosis of CF has been confirmed (yes/no)."@en . a ; "date"; "date_of_genotype"@en; "Date of initial genotype"@en; ; dcterms:description "Date of initial genotype is the date when the initial genotype testing was conducted for the patient."@en . a ; "date"; "DT_LAST_GENTPE"@en; "Date of last genotype"@en; ; dcterms:description "Date of last genotype is the date when the most recent genotype testing was conducted for the patient."@en . a ; "number"; "chromosome_1"@en; "Chromosome 1"@en; ; dcterms:description "Chromosome 1 lists CFTR mutation(s) related to Chromosome 1 for the patient."@en . a ; "date"; "date_of_clinical_diagnosis"@en; "Date of clinical diagnosis"@en; ; dcterms:description "Date of clinical diagnosis is the date when the clinician considers the patient as having CF."@en . a ; "string"; "symptoms"@en; "Symptoms"@en; ; dcterms:description "Symptoms describes the symptoms reported or observed for the patient, with a list of symptoms te be selected."@en . a ; "string"; "specify"@en; "Specify"@en; ; dcterms:description "Specify provides additional details or specifications related to symptoms not otherwise listed."@en . a ; "number"; "neonatal_screening_test"@en; "Neonatal screening test"@en; ; dcterms:description "Neonatal screening test indicates whether a neonatal screening test was conducted for the patient (yes/no), and its result (positive/negative/undetermined)."@en . a ; "date"; "date_of_sweat_test"@en; "Date of sweat test"@en; ; dcterms:description "Date of sweat test is the date when the sweat test was conducted to diagnose the patient."@en . a ; "number"; "type_of_sweat_test"@en; "Type of sweat test"@en; ; dcterms:description "Type of sweat test describes the specific type or method of sweat test conducted for the patient."@en . a ; "number"; "chloride"@en; "Chloride"@en; ; dcterms:description "Chloride represents the sweat chloride levels measured for the patient."@en . a ; "number"; "sodium"@en; "Sodium"@en; ; dcterms:description "Sodium represents the sweat sodium levels measured for the patient."@en . a ; "number"; "CD_OTH_COMPLIC"@en; "Other complications"@en; ; dcterms:description "Other complications specifies additional complications or conditions related to the patient's health."@en . a ; "string"; "TX_OTH_COMPLIC_TPE"@en; "Type"@en; ; dcterms:description "Type specifies the type of other complications or conditions related to the patient's health."@en . a ; "date"; "DT_RENAL_FUNCN_LAST_CONSTTN"@en; "Date"@en; ; dcterms:description "Date is the date when the last renal function test was conducted for the patient."@en . a ; "number"; "MS_YR_RENAL_FUNCN_CONSTTN"@en; "Creatinine (mg/dl)"@en; ; dcterms:description "Creatinine (mg/dl) represents the level of creatinine in the patient's blood serum, measured in milligrams per deciliter (mg/dl), at the last renal function test in the year"@en . a ; "number"; "CD_PSTTRPL_COMPLIC_CLAD"@en; "Chronic lung allograft dysfunction (CLAD)"@en; ; dcterms:description "Chronic lung allograft dysfunction (CLAD) indicates whether the patient has developped CLAD, i.e. when the transplanted lung(s) show progressive decline in function over time, and its type."@en . a ; "number"; "CD_PSTTRPL_COMPLIC_CLAD_BOS"@en; "BOS type"@en; ; dcterms:description "BOS type specifies the specific type of Bronchiolitis Obliterans Syndrome (BOS) observed in the patient."@en . a ; "number"; "CD_CONSTTN_OR_4"@en; "Number Consultations (< or >= 4)"@en; ; dcterms:description "Number Consultations (< or >= 4) indicatesif the patient had less than 4 CF multidisciplinary consultations that meet the specified criteria, or at least 4."@en . a ; "number"; "CD_DAY_HOSP"@en; "Days in hospital"@en; ; dcterms:description "Days in hospital indicates the total number of days the patient spent hospitalized during the reporting period, wether the reason is related to CF or not."@en . a ; "number"; "MS_REVALCENT"@en; "Days in revalidation center"@en; ; dcterms:description "Days in revalidation center indicates the total number of days the patient spent in a revalidation center during the reporting period."@en . a ; "string"; "CD_DAY_PO"@en; "Days per os"@en; ; dcterms:description "Days per os indicates the total number of days the patient took oral antibiotics during the reporting period (<1 month, 1-3 months, 3-6 months, > 6 months).."@en . a ; "number"; "CD_DAY_IV_HOM"@en; "Days iv at home"@en; ; dcterms:description "Days iv at home indicates the total number of days the patient received intravenous antibiotics at home during the reporting period."@en . a ; "number"; "CD_DAY_IV_HOSP"@en; "Days iv in hospital"@en; ; dcterms:description "Days iv in hospital indicates the total number of days the patient received intravenous antibiotics in a hospital setting during the reporting period."@en . a ; "number"; "MS_IV_REVALCENT"@en; "Days iv in revalidation center"@en; ; dcterms:description "Days iv in revalidation center indicates the total number of days the patient received intravenous antibiotics in a revalidation center during the reporting period."@en . a ; "number"; "MS_EXACRB"@en; "Nb of severe exacerbations"@en; ; dcterms:description "Nb of severe exacerbations indicates the total number of severe exacerbations, treated with intravenous antibiotics, experienced by the patient during the reporting period."@en . a ; "number"; "CD_NTM_TREAT"@en; "Treatment of NTM-pulmonary disease"@en; ; dcterms:description "NTM treated indicates whether the patient has been treated for Nontuberculous Mycobacteria (NTM) infection."@en . a ; "number"; "CD_NTM_TREAT_SPEC"@en; "NTM treated"@en; ; dcterms:description "NTM treated indicates which Nontuberculous Mycobacteria (NTM) species have been treated for this patient."@en . a ; "string"; "TX_NTM_TREAT_OTH"@en; "NTM treated Other"@en; ; dcterms:description "NTM treated indicates which Nontuberculous Mycobacteria (NTM) species otherwise not listed have been treated for this patient."@en . a ; "number"; "year_of_transplant"@en; "Year of transplant"@en; ; dcterms:description "Year of transplant indicates the year in which the transplant procedure was conducted."@en . a ; "number"; "CD_AZI"@en; "Azithromycine/macrolide"@en; ; dcterms:description "Azithromycine/macrolide indicates whether the patient received Azithromycin or another macrolide antibiotic for more than 3 months.."@en . a ; "number"; "CD_PS"@en; "Pancreatic sufficient"@en; ; dcterms:description "Pancreatic sufficient indicates whether the patient's pancreas function is sufficient based on elastase test results."@en . a ; "number"; "gastrostomy"@en; "Gastrostomy"@en; ; dcterms:description "Gastrostomy indicates whether the patient has a gastrostomy tube surgically implanted for nutritional support."@en . a ; "number"; "CD_DIET"@en; "Diet only (for diabetes)"@en; ; dcterms:description "Diet only (for diabetes) indicates whether the patient manages diabetes solely through dietary control without medication."@en . a ; "string"; "CD_ELEXTEZIVA_STP_REAS_2"@en; "Reason for restop Elexacaftor/tezacaftor/ivacaftor"@en; ; dcterms:description "Reason for restop Elexacaftor/tezacaftor/ivacaftor provides the reason or cause for the second stop or restop of Elexacaftor/Tezacaftor/Ivacaftor therapy."@en . a ; "date"; "DT_CTR_START"@en; "Start date blinded clinical trial"@en; ; dcterms:description "Start date blinded clinical trial indicates the date when a blinded clinical trial was initiated for the patient."@en . a ; "number"; "CD_CTR_CONTNG"@en; "Blinded clinical trial ongoing"@en; ; dcterms:description "Blinded clinical trial ongoing indicates whether the patient is still participating in a blinded clinical trial on 31/12 of the year of collection."@en . a ; "date"; "DT_CTR_STP"@en; "Stop date blinded clinical trial"@en; ; dcterms:description "Stop date blinded clinical trial indicates the date when the blinded clinical trial was discontinued or stopped for the patient."@en . a ; "date"; "DT_CTR_START_2"@en; "Restart date Blinded trial"@en; ; dcterms:description "Restart date Blinded trial indicates the date when a blinded clinical trial was restarted for the patient."@en . a ; "number"; "CD_CTR_CONTNG_2"@en; "Blinded trial restarted ongoing"@en; ; dcterms:description "Blinded trial restarted ongoing indicates whether the patient is undergoing restarted blinded clinical trial on 31/12 of the year of collection."@en . a ; "date"; "precise_date_of_first_entering_the_tx_waiting_list"@en; "Precise date of entering the Tx waiting list"@en; ; dcterms:description "Precise date of entering the Tx waiting list indicates the exact date when the patient entered the waiting list for transplantation."@en . a ; "number"; "type_of_cancer"@en; "Type of cancer"@en; ; dcterms:description "Type of cancer specifies the specific type or form of cancer diagnosed for the patient."@en . a ; "string"; "specify"@en; "Specify"@en; ; dcterms:description "Specify allows for additional details or specifications related to cancer otherwise not listed."@en . a ; "number"; "hypertension_treated"@en; "Hypertension treated"@en; ; dcterms:description "Hypertension treated indicates whether the patient has been treated for hypertension (high blood pressure)."@en . a ; "number"; "t_status_1"@en; "T Status 1"@en; ; dcterms:description "T Status 1 describes the status of the T repetition part related to CFTR onChromosome 1 for the patient."@en . a ; "date"; "precise_date_of_the_most_recent_tx"@en; "Precise date of the Tx"@en; ; dcterms:description "Precise date of the Tx indicates the exact date when the transplant procedure was conducted for the patient."@en . a ; "number"; "CD_CON_AN"@en; "Congenital anomalies"@en; ; dcterms:description "Congenital anomalies indicates whether the patient has any congenital anomalies."@en . a ; "string"; "TX_CON_AN_SPECIF"@en; "Specify congenital anomalies"@en; ; dcterms:description "Specify congenital anomalies allows the specification of specific congenital anomalies if selected above."@en . a ; "number"; "chromosome_2"@en; "Chromosome 2"@en; ; dcterms:description "Chromosome 2 lists CFTR mutation(s) related to Chromosome 2 for the patient."@en . a ; "string"; "chromosome_2_other"@en; "Chromosome 2 other"@en; ; dcterms:description "Chromosome 2 other provides CFTR mutation(s) otherwise not listed about Chromosome 2 for the patient."@en . a ; "number"; "t_status_2"@en; "T Status 2"@en; ; dcterms:description "T Status 2 describes the status of the T repetition part related to Chromosome 2 for the patient."@en . a ; "number"; "chromosome_1_cdna_name"@en; "Chromosome 1 (cDNA name)"@en; ; dcterms:description "Chromosome 1 (cDNA name) represents the cDNA (complementary DNA) name related to CFTR mutation(s) on the Chromosome 1 for the patient."@en . a ; "string"; "chromosome_1_other_cdna_name"@en; "Chromosome 1 other (cDNA name)"@en; ; dcterms:description "Chromosome 1 other (cDNA name) provides additional cDNA (complementary DNA) information otherwise not listed about Chromosome 1 for the patient."@en . a ; "number"; "t_status_1_cdna_name"@en; "T Status 1 (cDNA name)"@en; ; dcterms:description "T Status 1 (cDNA name) describes the cDNA (complementary DNA) status of the T repetition part related to CFTR on Chromosome 1 for the patient."@en . a ; "number"; "chromosome_2_cdna_name"@en; "Chromosome 2 (cDNA name)"@en; ; dcterms:description "Chromosome 2 (cDNA name) represents the cDNA (complementary DNA) name related to CFTR mutation(s) on the Chromosome 2 for the patient."@en . a ; "string"; "chromosome_2_other_cdna_name"@en; "Chromosome 2 other (cDNA name)"@en; ; dcterms:description "Chromosome 2 other (cDNA name) provides additional cDNA (complementary DNA) information otherwise not listed about Chromosome 2 for the patient."@en . a ; "number"; "t_status_2_cdna_name"@en; "T Status 2 (cDNA name)"@en; ; dcterms:description "T Status 2 (cDNA name) describes the cDNA (complementary DNA) status of the T repetition part related to CFTR on Chromosome 2 for the patient."@en . a ; "number"; "chromosome_1_protein_name"@en; "Chromosome 1 (Protein name)"@en; ; dcterms:description "Chromosome 1 (Protein name) represents the protein name related to CFTR mutation(s) on Chromosome 1 for the patient."@en . a ; "string"; "chromosome_1_other_protein_name"@en; "Chromosome 1 other (Protein name)"@en; ; dcterms:description "Chromosome 1 other (Protein name) represents CFTR mutation(s) otherwise not listed about the protein name related to Chromosome 1 (other) for the patient."@en . a ; "number"; "chromosome_2_protein_name"@en; "Chromosome 2 (Protein name)"@en; ; dcterms:description "Chromosome 2 (Protein name) represents the protein name related to CFTR mutation(s) on Chromosome 2 for the patient."@en . a ; "string"; "chromosome_2_other_protein_name"@en; "Chromosome 2 other (Protein name)"@en; ; dcterms:description "Chromosome 2 other (Protein name) represents CFTR mutation(s) otherwise not listed about the protein name related to Chromosome 2 (other) for the patient."@en . a ; "number"; "nasal_transepithelial_potential_difference"@en; "Nasal transepithelial potential difference"@en; ; dcterms:description "Nasal transepithelial potential difference refers to whether a Nasal transepithelial potential difference test was conducted for the patient (yes/no), and its result (positive/negative/undetermined)."@en . a ; "date"; "date_transepithelial_potential_difference"@en; "Date transepithelial potential difference"@en; ; dcterms:description "Date transepithelial potential difference is the date when the nasal transepithelial potential difference test was conducted."@en . a ; "number"; "sweat_test_performed_during_the_registration_year_other_cftrm"@en; "Sweat test performed during the registration year (other than for CFTRm)"@en; ; dcterms:description "Sweat test performed during the registration year (other than for CFTRm) indicates whether a new sweat test was conducted during the registration year for reasons other than CFTR modulator follow-up."@en . a ; "date"; "date_of_sweat_test_new"@en; "Date of sweat test"@en; ; dcterms:description "Date of sweat test is the date when the repeated sweat test was conducted for the patient."@en . a ; "number"; "type_of_sweat_test_new"@en; "Type of sweat test"@en; ; dcterms:description "Type of sweat test describes the specific type or method of repeated sweat test conducted for the patient."@en . a ; "number"; "chloride_new"@en; "Chloride"@en; ; dcterms:description "Chloride represents the sweat chloride levels measured for the patient in the repeated sweat test."@en . a ; "number"; "sodium_new"@en; "Sodium"@en; ; dcterms:description "Sodium represents the sweat sodium levels measured for the patient in the repeated sweat test."@en . a ; "number"; "patient_status"@en; "Patient Status"@en; ; dcterms:description "Patient Status indicates wheter the patient has been seen in the year, or reason for not being seen."@en . a ; "number"; "type_of_cancer"@en; "Type of cancer"@en; ; dcterms:description "Type of cancer specifies the type of cancer related to the patient's death."@en . a ; "number"; "type"@en; "Type of transplantation issue"@en; ; dcterms:description "Type of transplantation issue specifies the type of issue related to transplantation causing the patient's death."@en . a ; "string"; "specify"@en; "Specify other transplantation issue"@en; ; dcterms:description "Specify other transplantation issue provides additional details about other transplantation issues causing the patient's death."@en . a ; "string"; "TX_COD_CF_OTH"@en; "Specify other CF-related cause of death"@en; ; dcterms:description "Specify other CF-related cause of death provides additional details about other cystic fibrosis-related causes of death for the patient."@en . a ; "string"; "TX_COD_NONCF_OTH"@en; "Specify other non CF-related cause of death"@en; ; dcterms:description "Specify other non CF-related cause of death provides additional details about other non-cystic fibrosis-related causes of death for the patient."@en . a ; "date"; "date_consultation"@en; "Date consultation"@en; ; dcterms:description "Date consultation is the date of the last consultation with a CF specialist."@en . a ; "number"; "executed"@en; "Lung function executed"@en; ; dcterms:description "Lung function executed indicates whether a lung function test was conducted for the patient."@en . a ; "number"; "fvc_l"@en; "FVC (l)"@en; ; dcterms:description "FVC (Forced Vital Capacity) measures the total amount of air exhaled forcefully after a deep breath, in liters, at the last consultation."@en . a ; "number"; "fev1_l"@en; "FEV1 (l)"@en; ; dcterms:description "FEV1 (Forced Expiratory Volume in 1 second) measures the amount of air exhaled forcefully in the first second of exhalation, in liters, at the last consultation."@en . a ; "number"; "fef2575_ls"@en; "FEF25-75 (l/s)"@en; ; dcterms:description "FEF25-75 (Forced Expiratory Flow between 25% and 75% of the FVC) measures the average flow rate during the middle half of the FVC maneuver, in liters per second, at the last consultation."@en . a ; "boolean"; "last_is_best"@en; "Is the best lung function the same as the last lung function?"@en; ; dcterms:description "Is the best lung function the same as the last lung function, indicates whether the best recorded lung function (based on FEV1%) matches the last recorded lung function for the patient."@en . a ; "date"; "date_of_best_lungfx"@en; "Date of best LungFx"@en; ; dcterms:description "Date of best LungFx is the date when the best recorded lung function test was conducted for the patient."@en . a ; "number"; "fvc_l"@en; "FVC (l)"@en; ; dcterms:description "FVC (Forced Vital Capacity) measures the total amount of air exhaled forcefully after a deep breath, in liters, when the best recorded lung function test was conducted for the patient"@en . a ; "number"; "fev1_l"@en; "FEV1 (l)"@en; ; dcterms:description "FEV1 (Forced Expiratory Volume in 1 second) measures the amount of air exhaled forcefully in the first second of exhalation, in liters, when the best recorded lung function test was conducted for the patient"@en . a ; "number"; "fef2575_ls"@en; "FEF25-75 (l/s)"@en; ; dcterms:description "FEF25-75 (Forced Expiratory Flow between 25% and 75% of the FVC) measures the average flow rate during the middle half of the FVC maneuver, in liters per second, when the best recorded lung function test was conducted for the patient"@en . a ; "number"; "weight_kg"@en; "Weight (kg)"@en; ; dcterms:description "Weight (kg) represents the weight measured for the patient in kilograms, when the best recorded lung function test was conducted for the patient"@en . a ; "number"; "height_cm"@en; "Height (cm)"@en; ; dcterms:description "Height (cm) represents the height measured for the patient in centimeters, when the best recorded lung function test was conducted for the patient"@en . a ; "number"; "bmi"@en; "BMI"@en; ; dcterms:description "BMI (Body Mass Index) is a value derived from the weight and height of the patient, used to assess body composition."@en . a ; "boolean"; "CD_LCI"@en; "Lung clearance index LCI 2.5% evaluation this year"@en; ; dcterms:description "Lung clearance index LCI 2.5% evaluation this year indicates whether the lung clearance index LCI 2.5% evaluation was conducted during the current year for the patient."@en . a ; "date"; "DT_LCI"@en; "Date of the lung clearance index LCI"@en; ; dcterms:description "Date of the lung clearance index LCI is the date when the lung clearance index LCI evaluation was conducted for the patient."@en . a ; "number"; "MS_LCI_LOW"@en; "Lowest value"@en; ; dcterms:description "Lowest value represents the lowest value recorded during the lung clearance index LCI evaluation for the patient."@en . a ; "number"; "CD_LCI_DEVICE"@en; "Type of device"@en; ; dcterms:description "Type of device specifies the type of device used for the lung clearance index LCI evaluation for the patient."@en . a ; "number"; "microbiology_executed"@en; "Microbiology executed"@en; ; dcterms:description "Microbiology executed indicates whether microbiology tests were conducted for the patient during the registration year."@en . a ; "number"; "cultures_of_the_registration_year"@en; "Cultures of the registration year"@en; ; dcterms:description "Cultures of the registration year refers to the specific cultures tested during the registration year for the patient."@en . a ; "string"; "pathogen_ever_found_during_the_year"@en; "Pathogen ever found during the year"@en; ; dcterms:description "Pathogen ever found during the year indicates whether listed pathogens were detected during the year for the patient."@en . a ; "string"; "TX_PATHOG_OTH"@en; "Please specify"@en; ; dcterms:description "Please specify allows for additional details related to pathogen(s) otherwise not listed."@en . a ; "number"; "CD_NTM_CULT"@en; "Nontuberculous Mycobacterium (NTM) culture this year"@en; ; dcterms:description "Nontuberculous Mycobacterium (NTM) culture this year indicates whether a culture for NTM was conducted during the current year for the patient, and its result (positive/negative/unknown)."@en . a ; "number"; "CD_NTM_SPEC"@en; "NTM species"@en; ; dcterms:description "NTM species specifies the species of Nontuberculous Mycobacterium identified for the patient."@en . a ; "string"; "TX_NTM_SPEC_OTH"@en; "NTM Other"@en; ; dcterms:description "NTM Other provides additional details related to Nontuberculous Mycobacterium (NTM) species otherwise not listed."@en . a ; "number"; "CD_FUNGI_CULT"@en; "Fungi culture this year"@en; ; dcterms:description "Fungi culture this year indicates whether a culture for fungi was conducted during the current year for the patient, and its result (positive/negative/unknown)."@en . a ; "number"; "CD_FUNGI_SPEC"@en; "Fungi species"@en; ; dcterms:description "Fungi species specifies the species of fungi identified for the patient."@en . a ; "string"; "TX_FUNGI_SPEC_SCEDO_OTH"@en; "Scedosporium Other"@en; ; dcterms:description "Scedosporium Other provides additional details or specifications related to Scedosporium species otherwise not listed."@en . a ; "string"; "TX_FUNGI_SPEC_OTH"@en; "Fungi Other"@en; ; dcterms:description "Fungi Other provides additional details or specifications related to other fungi otherwise not listed."@en . a ; "number"; "number_of_exploitable_months__or__4"@en; "Number of exploitable months (< or >= 4)"@en; ; dcterms:description "Number of exploitable months (< or >= 4) indicates whether the patient had less than or equal to 4 cultures done in the year on different calendar months, or greater than or equal to 4."@en . a ; "number"; "pseudomonas_colonisation"@en; "Pseudomonas colonisation"@en; ; dcterms:description "Pseudomonas colonisation indicates whether the patient has a chronic infection with Pseudomonas aeruginosa."@en . a ; "number"; "b_cepacia_compl_colonisation"@en; "B. cepacia compl. colonisation"@en; ; dcterms:description "B. cepacia compl. colonisation indicates whether the patient has a chronic infection with Burkholderia cepacia complex bacteria."@en . a ; "number"; "stenotrophomonas_colonisation"@en; "Stenotrophomonas colonisation"@en; ; dcterms:description "Stenotrophomonas colonisation indicates whether the patient has a chronic infection with Stenotrophomonas maltophilia."@en . a ; "number"; "achromobacter_colonisation"@en; "Achromobacter colonisation"@en; ; dcterms:description "Achromobacter colonisation indicates whether the patient has a chronic infection with Achromobacter xylosoxidans."@en . a ; "parenteral_feeding"@en; "Parenteral feeding"@en; ; dcterms:description "Parenteral feeding indicates whether the patient receives nutrition intravenously as part of their treatment regimen."@en; "number" . a ; "number"; "oral_therapy_for_diabetes"@en; "Oral therapy for diabetes"@en; ; dcterms:description "Oral therapy for diabetes indicates whether the patient receives oral medications for managing diabetes as part of their treatment regimen."@en . a ; "number"; "insulin_therapy"@en; "Insulin therapy"@en; ; dcterms:description "Insulin therapy indicates whether the patient receives insulin injections or infusions as part of their treatment regimen."@en . a ; "number"; "ppi__h2_receptor_blocker"@en; "PPI + H2 receptor blocker"@en; ; dcterms:description "PPI + H2 receptor blocker indicates whether the patient receives Proton Pump Inhibitors (PPIs) and/or H2 receptor blockers as part of their treatment regimen."@en . a ; "number"; "anticonceptive_therapy"@en; "Anticonceptive therapy"@en; ; dcterms:description "Anticonceptive therapy indicates whether the patient receives contraceptive therapy as part of their treatment regimen."@en . a ; "number"; "bisphosphonates"@en; "Bisphosphonates"@en; ; dcterms:description "Bisphosphonates indicates whether the patient receives Bisphosphonate medications as part of their treatment regimen."@en . a ; "number"; "randomised_drug_trial"@en; "Randomised drug trial"@en; ; dcterms:description "Randomised drug trial indicates whether the patient is participating in a randomized drug trial as part of their treatment regimen."@en . a ; "number"; "CD_CFR_MODUL_THERPY"@en; "CFTR modulating therapy"@en; ; dcterms:description "CFTR modulating therapy indicates whether the patient receives therapy targeting the CFTR (Cystic Fibrosis Transmembrane Conductance Regulator) protein to correct its function."@en . a ; "string"; "CD_CFR_MODUL_THERPY_CHOICE"@en; "CFTR modulating therapy"@en; ; dcterms:description "CFTR modulating therapy indicates which molecule(s) the patient receives as therapy targeting the CFTR (Cystic Fibrosis Transmembrane Conductance Regulator) protein to correct its function."@en . a ; "date"; "DT_IVA_START"@en; "Start date ivacaftor"@en; ; dcterms:description "Start date ivacaftor indicates the date when Ivacaftor therapy was initiated for the patient."@en . a ; "number"; "CD_IVA_CONTNG"@en; "Ivacaftor ongoing"@en; ; dcterms:description "Ivacaftor ongoing indicates whether the patient is undergoing Ivacaftor therapy as part of their treatment regimen on 31/12 of the year of collection."@en . a ; "date"; "DT_IVA_STP"@en; "Stop date ivacaftor"@en; ; dcterms:description "Stop date ivacaftor indicates the date when Ivacaftor therapy was discontinued or stopped for the patient."@en . a ; "string"; "CD_IVA_STP_REAS"@en; "Reason for stop ivacaftor"@en; ; dcterms:description "Reason for stop ivacaftor provides the reason or cause for discontinuation of Ivacaftor therapy for the patient."@en . a ; "date"; "DT_IVA_START_2"@en; "Restart date ivacaftor"@en; ; dcterms:description "Restart date ivacaftor indicates the date when Ivacaftor therapy was restarted for the patient."@en . a ; "number"; "CD_IVA_CONTNG_2"@en; "Ivacaftor restarted ongoing"@en; ; dcterms:description "Ivacaftor restarted ongoing indicates whether the patient is undergoing restarted Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_IVA_STP_2"@en; "Restop date ivacaftor"@en; ; dcterms:description "Restop date ivacaftor indicates the date when Ivacaftor therapy was again stopped or restopped for the patient."@en . a ; "string"; "CD_IVA_STP_REAS_2"@en; "Reason for restop ivacaftor"@en; ; dcterms:description "Reason for restop ivacaftor provides the reason or cause for the second discontinuation of Ivacaftor therapy for the patient."@en . a ; "number"; "mrsa_colonisation"@en; "MRSA colonisation"@en; ; dcterms:description "MRSA colonisation indicates whether the patient has a chronic infection with Methicillin-resistant Staphylococcus aureus bacteria."@en . a ; "number"; "CD_MSSA_COLON"@en; "MSSA colonisation"@en; ; dcterms:description "MSSA colonisation indicates whether the patient has a chronic infection with Methicillin-sensitive Staphylococcus aureus bacteria."@en . a ; "number"; "CD_HAEMOPH_COLON"@en; "Haemophilus influenzae colonisation"@en; ; dcterms:description "Haemophilus influenzae colonisation indicates whether the patient has a chronic infection with Haemophilus influenzae bacteria."@en . a ; "number"; "CD_COVID"@en; "SARS-CoV-2 test performed this year"@en; ; dcterms:description "SARS-CoV-2 test performed this year indicates whether a test for SARS-CoV-2 (COVID-19) was conducted during the current year for the patient, and its result (positive/negative/unknown)."@en . a ; "number"; "allergic_broncho_pulmonary_aspergillosis"@en; "Allergic broncho pulmonary aspergillosis"@en; ; dcterms:description "Allergic broncho pulmonary aspergillosis indicates whether the patient has allergic bronchopulmonary aspergillosis."@en . a ; "number"; "abpa_treated"@en; "ABPA Treated"@en; ; dcterms:description "ABPA Treated indicates whether the patient has been treated for Allergic broncho pulmonary aspergillosis (ABPA)."@en . a ; "number"; "pneumothorax"@en; "Pneumothorax"@en; ; dcterms:description "Pneumothorax indicates whether the patient has experienced pneumothorax (collapsed lung)."@en . a ; "number"; "nasal_polyps_having_requiredrequiring_therapy"@en; "Nasal polyps (having required/requiring therapy)"@en; ; dcterms:description "Nasal polyps (having required/requiring therapy) indicates whether the patient has had nasal polyps that required or require therapy."@en . a ; "number"; "massive_haemoptysis"@en; "Massive haemoptysis"@en; ; dcterms:description "Massive haemoptysis indicates whether the patient has experienced significant and potentially life-threatening coughing up of blood (>250ml)."@en . a ; "number"; "bronchiectasis"@en; "Bronchiectasis"@en; ; dcterms:description "Bronchiectasis indicates whether the patient had a CT-scan to detect bronchiectasis (a condition where the airways in the lungs are abnormally widened), and its result."@en . a ; "number"; "cf_diabetes"@en; "CF diabetes"@en; ; dcterms:description "CF diabetes indicates whether the patient has diabetes or glucose intolerance related to cystic fibrosis."@en . a ; "number"; "ogtt_done_this_year"@en; "OGTT done this year"@en; ; dcterms:description "OGTT done this year indicates whether an Oral Glucose Tolerance Test (OGTT) was conducted during the current year for the patient."@en . a ; "number"; "acute_pancreatitis"@en; "Acute pancreatitis"@en; ; dcterms:description "Acute pancreatitis indicates whether the patient has experienced acute inflammation of the pancreas."@en . a ; "number"; "cirrhosis_with_portal_hypertension"@en; "Cirrhosis with portal hypertension"@en; ; dcterms:description "Cirrhosis with portal hypertension indicates whether the patient has cirrhosis with elevated blood pressure in the portal vein system."@en . a ; "number"; "intestinal_obstruction_requiring_surgery"@en; "Intestinal obstruction: requiring surgery"@en; ; dcterms:description "Intestinal obstruction: requiring surgery indicates whether the patient had intestinal obstruction that required surgical intervention."@en . a ; "number"; "intestinal_obstruction_not_requiring_surgery"@en; "Intestinal obstruction: not requiring surgery"@en; ; dcterms:description "Intestinal obstruction: not requiring surgery indicates whether the patient had intestinal obstruction that did not require surgical intervention."@en . a ; ; dcterms:description "Restop2 date Lumacaftor/ivacaftor indicates the date when Lumacaftor/Ivacaftor therapy was stopped or restopped for the patient for the second time."@en; "date"; "DT_LUMIVA_STP_3"@en; "Restop2 date Lumacaftor/ivacaftor"@en . a ; "string"; "CD_LUMIVA_STP_REAS_3"@en; "Reason for restop2 Lumacaftor/ivacaftor"@en; ; dcterms:description "Reason for restop2 Lumacaftor/ivacaftor provides the reason or cause for the second stop or restop of Lumacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_SWEAT_PRE_LUMIVA"@en; "Date of sweat test done before initiation Lumacaftor/ivacaftor"@en; ; dcterms:description "Date of sweat test done before initiation Lumacaftor/ivacaftor indicates the date when a sweat test was conducted before initiating Lumacaftor/Ivacaftor therapy for the patient."@en . a ; "number"; "MS_SWEAT_PRE_LUMIVA"@en; "Chloride before initiation Lumacaftor/ivacaftor"@en; ; dcterms:description "Chloride before initiation Lumacaftor/ivacaftor indicates the chloride level measured in the sweat test conducted before initiating Lumacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_TEZIVA_START"@en; "Start date Tezacaftor/ivacaftor"@en; ; dcterms:description "Start date Tezacaftor/ivacaftor indicates the date when Tezacaftor/Ivacaftor therapy was initiated for the patient."@en . a ; "number"; "CD_TEZIVA_CONTNG"@en; "Tezacaftor/ivacaftor ongoing"@en; ; dcterms:description "Tezacaftor/ivacaftor ongoing indicates whether the patient is undergoing Tezacaftor/Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_TEZIVA_STP"@en; "Stop date Tezacaftor/ivacaftor"@en; ; dcterms:description "Stop date Tezacaftor/ivacaftor indicates the date when Tezacaftor/Ivacaftor therapy was discontinued or stopped for the patient."@en . a ; "string"; "CD_TEZIVA_STP_REAS"@en; "Reason for stop Tezacaftor/ivacaftor"@en; ; dcterms:description "Reason for stop Tezacaftor/ivacaftor provides the reason or cause for discontinuation of Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_TEZIVA_START_2"@en; "Restart date Tezacaftor/ivacaftor"@en; ; dcterms:description "Restart date Tezacaftor/ivacaftor indicates the date when Tezacaftor/Ivacaftor therapy was restarted for the patient."@en . a ; "number"; "CD_TEZIVA_CONTNG_2"@en; "Tezacaftor/ivacaftor restarted ongoing"@en; ; dcterms:description "Tezacaftor/ivacaftor restarted ongoing indicates whether the patient is undergoing restarted Tezacaftor/Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_TEZIVA_STP_2"@en; "Restop date Tezacaftor/ivacaftor"@en; ; dcterms:description "Restop date Tezacaftor/ivacaftor indicates the date when Tezacaftor/Ivacaftor therapy was again stopped or restopped for the patient."@en . a ; "string"; "CD_TEZIVA_STP_REAS_2"@en; "Reason for restop Tezacaftor/ivacaftor"@en; ; dcterms:description "Reason for restop Tezacaftor/ivacaftor provides the reason or cause for the second discontinuation of Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_TEZIVA_START_3"@en; "Restart2 date Tezacaftor/ivacaftor"@en; ; dcterms:description "Restart2 date Tezacaftor/ivacaftor indicates the date when Tezacaftor/Ivacaftor therapy was restarted for the patient a second time."@en . a ; "number"; "CD_TEZIVA_CONTNG_3"@en; "Tezacaftor/ivacaftor restarted2 ongoing"@en; ; dcterms:description "Tezacaftor/ivacaftor restarted2 ongoing indicates whether the patient is undergoing the second restarted Tezacaftor/Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_TEZIVA_STP_3"@en; "Restop2 date Tezacaftor/ivacaftor"@en; ; dcterms:description "Restop2 date Tezacaftor/ivacaftor indicates the date when Tezacaftor/Ivacaftor therapy was stopped or restopped for the patient for the second time."@en . a ; "string"; "CD_TEZIVA_STP_REAS_3"@en; "Reason for restop2 Tezacaftor/ivacaftor"@en; ; dcterms:description "Reason for restop2 Tezacaftor/ivacaftor provides the reason or cause for the second stop or restop of Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_SWEAT_PRE_TEZIVA"@en; "Date of sweat test done before initiation Tezacaftor/ivacaftor"@en; ; dcterms:description "Date of sweat test done before initiation Tezacaftor/ivacaftor indicates the date when a sweat test was conducted before initiating Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "number"; "MS_SWEAT_PRE_TEZIVA"@en; "Chloride before initiation Tezacaftor/ivacaftor"@en; ; dcterms:description "Chloride before initiation Tezacaftor/ivacaftor indicates the chloride level measured in the sweat test conducted before initiating Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_IVA_START_3"@en; "Restart2 date ivacaftor"@en; ; dcterms:description "Restart2 date ivacaftor indicates the date when Ivacaftor therapy was restarted for the patient a second time."@en . a ; "number"; "CD_IVA_CONTNG_3"@en; "Ivacaftor restarted2 ongoing"@en; ; dcterms:description "Ivacaftor restarted2 ongoing indicates whether the patient is undergoing the second restarted Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_IVA_STP_3"@en; "Restop2 date ivacaftor"@en; ; dcterms:description "Restop2 date ivacaftor indicates the date when Ivacaftor therapy was stopped or restopped for the patient for the second time."@en . a ; "string"; "CD_IVA_STP_REAS_3"@en; "Reason for restop2 ivacaftor"@en; ; dcterms:description "Reason for restop2 ivacaftor provides the reason or cause for the second stop or restop of Ivacaftor therapy for the patient."@en . a ; "date"; "DT_SWEAT_PRE_IVA"@en; "Date of sweat test done before initiation Ivacaftor"@en; ; dcterms:description "Date of sweat test done before initiation Ivacaftor indicates the date when a sweat test was conducted before initiating Ivacaftor therapy for the patient."@en . a ; "number"; "MS_SWEAT_PRE_IVA"@en; "Chloride before initiation Ivacaftor"@en; ; dcterms:description "Chloride before initiation Ivacaftor indicates the chloride level measured in the sweat test conducted before initiating Ivacaftor therapy for the patient."@en . a ; "date"; "DT_LUMIVA_START"@en; "Start date Lumacaftor/ivacaftor"@en; ; dcterms:description "Start date Lumacaftor/ivacaftor indicates the date when Lumacaftor/Ivacaftor therapy was initiated for the patient."@en . a ; "number"; "CD_LUMIVA_CONTNG"@en; "Lumacaftor/ivacaftor ongoing"@en; ; dcterms:description "Lumacaftor/ivacaftor ongoing indicates whether the patient is undergoing Lumacaftor/Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_LUMIVA_STP"@en; "Stop date Lumacaftor/ivacaftor"@en; ; dcterms:description "Stop date Lumacaftor/ivacaftor indicates the date when Lumacaftor/Ivacaftor therapy was discontinued or stopped for the patient."@en . a ; "string"; "CD_LUMIVA_STP_REAS"@en; "Reason for stop Lumacaftor/ivacaftor"@en; ; dcterms:description "Reason for stop Lumacaftor/ivacaftor provides the reason or cause for discontinuation of Lumacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_LUMIVA_START_2"@en; "Restart date Lumacaftor/ivacaftor"@en; ; dcterms:description "Restart date Lumacaftor/ivacaftor indicates the date when Lumacaftor/Ivacaftor therapy was restarted for the patient."@en . a ; "number"; "CD_LUMIVA_CONTNG_2"@en; "Lumacaftor/ivacaftor restarted ongoing"@en; ; dcterms:description "Lumacaftor/ivacaftor restarted ongoing indicates whether the patient is undergoing restarted Lumacaftor/Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_LUMIVA_STP_2"@en; "Restop date Lumacaftor/ivacaftor"@en; ; dcterms:description "Restop date Lumacaftor/ivacaftor indicates the date when Lumacaftor/Ivacaftor therapy was again stopped or restopped for the patient."@en . a ; "string"; "CD_LUMIVA_STP_REAS_2"@en; "Reason for restop Lumacaftor/ivacaftor"@en; ; dcterms:description "Reason for restop Lumacaftor/ivacaftor provides the reason or cause for the second discontinuation of Lumacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_LUMIVA_START_3"@en; "Restart2 date Lumacaftor/ivacaftor"@en; ; dcterms:description "Restart2 date Lumacaftor/ivacaftor indicates the date when Lumacaftor/Ivacaftor therapy was restarted for the patient a second time."@en . a ; "number"; "CD_LUMIVA_CONTNG_3"@en; "Lumacaftor/ivacaftor restarted2 ongoing"@en; ; dcterms:description "Lumacaftor/ivacaftor restarted2 ongoing indicates whether the patient is undergoing the second restarted Lumacaftor/Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "number"; "clostridium"@en; "Clostridium"@en; ; dcterms:description "Clostridium indicates whether the patient has been treated for Clostridium infection."@en . a ; "number"; "cf_related_arthritisarthropathy"@en; "CF related arthritis/arthropathy"@en; ; dcterms:description "CF related arthritis/arthropathy indicates whether the patient has arthritis or arthropathy related to cystic fibrosis."@en . a ; "number"; "CD_BONE_DNSTY_TEST"@en; "Bone density test"@en; ; dcterms:description "Bone density test indicates whether a bone density test was conducted for the patient, and which type of score was given (t- or z-score)"@en . a ; "date"; "date_of_most_recent_dexa"@en; "Date of most recent DEXA"@en; ; dcterms:description "Date of most recent DEXA is the date when the most recent Dual-energy X-ray absorptiometry (DEXA) scan was performed for the patient."@en . a ; "number"; "MS_MOST_RECNT_DEXA"@en; "Lowest score value"@en; ; dcterms:description "Lowest score value represents the lowest bone density score recorded during the bone density test for the patient."@en . a ; "number"; "CD_SALTLOSS"@en; "Salt loss syndrome"@en; ; dcterms:description "Salt loss syndrome indicates whether the patient has salt loss syndrome, a condition characterized by excessive loss of salt."@en . a ; "date"; "DT_CFTR_OTH_STP"@en; "Stop date other CFTR modulating therapy"@en; ; dcterms:description "Stop date other CFTR modulating therapy indicates the date when other CFTR modulating therapy was discontinued or stopped for the patient."@en . a ; "date"; "DT_CFTR_OTH_START_2"@en; "Restart date Other CFTR modulating therapy"@en; ; dcterms:description "Restart date Other CFTR modulating therapy indicates the date when other CFTR modulating therapy was restarted for the patient."@en . a ; "string"; "CD_CFTR_OTH_CONTNG_2"@en; "Other CFTR modulating therapy restarted ongoing"@en; ; dcterms:description "Other CFTR modulating therapy restarted ongoing indicates whether the patient is undergoing restarted other CFTR modulating therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_CFTR_OTH_STP_2"@en; "Restop date Other CFTR modulating therapy"@en; ; dcterms:description "Restop date Other CFTR modulating therapy indicates the date when other CFTR modulating therapy was again stopped or restopped for the patient."@en . a ; "date"; "DT_CFTR_OTH_START_3"@en; "Restart2 date Other CFTR modulating therapy"@en; ; dcterms:description "Restart2 date Other CFTR modulating therapy indicates the date when other CFTR modulating therapy was restarted for the patient a second time."@en . a ; "boolean"; "CD_CFTR_OTH_CONTNG_3"@en; "Other CFTR modulating therapy restarted2 ongoing"@en; ; dcterms:description "Other CFTR modulating therapy restarted2 ongoing indicates whether the patient is undergoing the second restarted other CFTR modulating therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_CFTR_OTH_STP_3"@en; "Restop2 date Other CFTR modulating therapy"@en; ; dcterms:description "Restop2 date Other CFTR modulating therapy indicates the date when other CFTR modulating therapy was stopped or restopped for the patient for the second time."@en . a ; "number"; "regular_chest_physiotherapy"@en; "Regular chest physiotherapy"@en; ; dcterms:description "Regular chest physiotherapy indicates whether the patient undergoes regular sessions of chest physiotherapy (with a physiotherapist or by the patient)"@en . a ; "number"; "steroids"@en; "Steroids"@en; ; dcterms:description "Steroids indicates whether the patient is taking steroids as part of their treatment regimen, for more than 3 months."@en . a ; "number"; "everolimus"@en; "Everolimus"@en; ; dcterms:description "Everolimus indicates whether the patient is taking everolimus as part of their treatment regimen, for more than 3 months."@en . a ; "number"; "other_immunosuppressive_therapy"@en; "Other immunosuppressive therapy"@en; ; dcterms:description "Other immunosuppressive therapy indicates whether the patient is undergoing any other form of immunosuppressive therapy not specified above,, for more than 3 months."@en . a ; "string"; "if_yes_specify"@en; "If yes, specify"@en; ; dcterms:description "If yes, specify allows the specification of other forms of immunosuppressive therapy if selected above."@en . a ; "number"; "CD_INHAL_THERPY_RHDNASE"@en; "RhDnase"@en; ; dcterms:description "RhDnase indicates whether the patient received RhDnase (recombinant human DNase) as part of their inhalation treatment."@en . a ; "number"; "CD_INHAL_THERPY_MUCLY"@en; "Other mucolytics"@en; ; dcterms:description "Other mucolytics indicates whether the patient received mucolytic agents, other than listed, as part of their inhalation treatment."@en . a ; "number"; "CD_INHAL_THERPY_BRCHO"@en; "Bronchodilators"@en; ; dcterms:description "Bronchodilators indicates whether the patient received bronchodilators as part of their inhalation treatment."@en . a ; "number"; "CD_INHAL_THERPY_CORTIC"@en; "Corticosteroids"@en; ; dcterms:description "Corticosteroids indicates whether the patient received corticosteroids as part of their inhalation treatment."@en . a ; "number"; "CD_INHAL_THERPY_HYPTON_SAL"@en; "Hypertonic saline"@en; ; dcterms:description "Hypertonic saline indicates whether the patient received hypertonic saline as part of their inhalation treatment."@en . a ; "number"; "CD_ANT_INFLAM_PO2"@en; "Antiinflammatories p.o"@en; ; dcterms:description "Antiinflammatories p.o indicates whether the patient received oral anti-inflammatory medications as part of their treatment regimen, for more than 3 months."@en . a ; "number"; "CD_NSAID_PO"@en; "NSAID"@en; ; dcterms:description "NSAID indicates whether the patient received non-steroidal anti-inflammatory drugs (NSAIDs) as part of their treatment regimen, for more than 3 months."@en . a ; "number"; "CD_ANT_INFLAM_PO_SYSTMC"@en; "Systemic Corticoids"@en; ; dcterms:description "Systemic Corticoids indicates whether the patient received systemic corticosteroids as part of their treatment regimen, for more than 3 months."@en . a ; "number"; "CD_ANT_INFLAM_PO_AZI"@en; "Azithromycine"@en; ; dcterms:description "Azithromycine indicates whether the patient received Azithromycin or a similar macrolide antibiotic as part of their treatment regimen, for more than 3 months."@en . a ; "number"; "CD_INFLAMM_LEUKAS"@en; "Anti-leucotriens"@en; ; dcterms:description "Anti-leucotriens indicates whether the patient received anti-leukotriene medications as part of their treatment regimen, for more than 3 months."@en . a ; "number"; "CD_INFLAMM_OTH"@en; "Other"@en; ; dcterms:description "Other indicates whether the patient received oral anti-inflammatory treatment other than listed, for more than 3 months."@en . a ; "string"; "TX_INFLAMM_OTH"@en; "Specify other anti-inflammatories"@en; ; dcterms:description "Specify other anti-inflammatories allows for specifying additional details related to other anti-inflammatory medications or treatments received by the patient."@en . a ; "number"; "CD_PANCRC_ENZ"@en; "Pancreatic enzymes"@en; ; dcterms:description "Pancreatic enzymes indicates whether the patient receives pancreatic enzyme replacement therapy (PERT) as part of their treatment regimen for more than 3 months."@en . a ; "number"; "CD_UDCA"@en; "Ursodeoxycholic acid"@en; ; dcterms:description "Ursodeoxycholic acid indicates whether the patient receives Ursodeoxycholic acid as part of their treatment regimen for more than 3 months."@en . a ; "number"; "tube_feeding"@en; "Tube feeding"@en; ; dcterms:description "Tube feeding indicates whether the patient receives nutrition via a feeding tube as part of their treatment regimen."@en . a ; "FVC best post-transp LungFx 2 (l)"@en; ; dcterms:description "FVC best post-transp LungFx 2 (l) represents the Forced Vital Capacity measured during the best recorded post-transplant lung function test (second occurrence) for the patient, in liters."@en; "number"; "fvc_best_posttransp_lungfx_2_l"@en . a ; "date"; "DT_RENAL_FUNCN_1M_PSTTRPL"@en; "Date"@en; ; dcterms:description "Date is the date when the renal function test was conducted for the patient about one month after transplantation."@en . a ; "number"; "MS_RENAL_FUNCN_1M_CREAN"@en; "Creatinine (mg/dl)"@en; ; dcterms:description "Creatinine (mg/dl) represents the level of creatinine in the patient's blood serum, measured in milligrams per deciliter (mg/dl), at the renal function test about one month after transplantation."@en . a ; "number"; "CD_PSTTRPL_COMPLIC_PTLD"@en; "Post-transplant lympho-proliferative disease"@en; ; dcterms:description "Post-transplant lympho-proliferative disease indicates whether the patient has developed lymphoproliferative disease following a transplant."@en . a ; "date"; "DT_SWEAT_POST_IVA"@en; "Date of sweat test done after initiation Ivacaftor"@en; ; dcterms:description "Date of sweat test done after initiation Ivacaftor indicates the date when a sweat test was conducted after initiating Ivacaftor therapy for the patient."@en . a ; "number"; "MS_SWEAT_POST_IVA"@en; "Lowest chloride after intiation Ivacaftor"@en; ; dcterms:description "Lowest chloride after initiation Ivacaftor indicates the lowest chloride level measured in the sweat test conducted after initiating Ivacaftor therapy for the patient."@en . a ; "date"; "DT_SWEAT_POST_LUMIVA"@en; "Date of sweat test done after initiation Lumacaftor/ivacaftor"@en; ; dcterms:description "Date of sweat test done after initiation Lumacaftor/ivacaftor indicates the date when a sweat test was conducted after initiating Lumacaftor/Ivacaftor therapy for the patient."@en . a ; "number"; "MS_SWEAT_POST_LUMIVA"@en; "Lowest chloride after initiation Lumacaftor/ivacaftor"@en; ; dcterms:description "Lowest chloride after initiation Lumacaftor/ivacaftor indicates the lowest chloride level measured in the sweat test conducted after initiating Lumacaftor/Ivacaftor therapy for the patient."@en . a dcat:Resource, dcat:Distribution; dcterms:accessRights ; dcterms:language ; dcterms:license ; ; "2025-02-21T14:55:32.345Z"^^xsd:dateTime; "2025-02-21T15:54:33.296Z"^^xsd:dateTime; dcterms:isPartOf ; , ; dcat:downloadURL ; dcat:accessURL ; dcat:version "v10.0.2"; "BCFR | Data collection definition"; dcterms:title "BCFR | Data collection definition"@en; dcterms:conformsTo . ; . ; . a dcterms:RightsStatement; dcterms:description "This resource has no access restriction" . a ; dcterms:identifier "https://sciensano.healthdataportal.eu:443/sample/49f62dcb-e547-4b1f-96dd-ae9e7174e0ed" . a ; "date"; "DT_ELEXTEZIVA_START"@en; "Start date Elexacaftor/tezacaftor/ivacaftor"@en; ; dcterms:description "Start date Elexacaftor/tezacaftor/ivacaftor indicates the date when Elexacaftor/Tezacaftor/Ivacaftor therapy was initiated for the patient."@en . a ; "boolean"; "CD_ELEXTEZIVA_CONTNG"@en; "Elexacaftor/tezacaftor/ivacaftor ongoing"@en; ; dcterms:description "Elexacaftor/tezacaftor/ivacaftor ongoing indicates whether the patient is undergoing Elexacaftor/Tezacaftor/Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_ELEXTEZIVA_STP"@en; "Stop date Elexacaftor/tezacaftor/ivacaftor"@en; ; dcterms:description "Stop date Elexacaftor/tezacaftor/ivacaftor indicates the date when Elexacaftor/Tezacaftor/Ivacaftor therapy was discontinued or stopped for the patient."@en . a ; "string"; "CD_ELEXTEZIVA_STP_REAS"@en; "Reason for stop Elexacaftor/tezacaftor/ivacaftor"@en; ; dcterms:description "Reason for stop Elexacaftor/tezacaftor/ivacaftor provides the reason or cause for discontinuation of Elexacaftor/Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_ELEXTEZIVA_START_2"@en; "Restart date Elexacaftor/tezacaftor/ivacaftor"@en; ; dcterms:description "Restart date Elexacaftor/tezacaftor/ivacaftor indicates the date when Elexacaftor/Tezacaftor/Ivacaftor therapy was restarted for the patient."@en . a ; "number"; "CD_ELEXTEZIVA_CONTNG_2"@en; "Elexacaftor/tezacaftor/ivacaftor restarted ongoing"@en; ; dcterms:description "Elexacaftor/tezacaftor/ivacaftor restarted ongoing indicates whether the patient is undergoing restarted Elexacaftor/Tezacaftor/Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_ELEXTEZIVA_STP_2"@en; "Restop date Elexacaftor/tezacaftor/ivacaftor"@en; ; dcterms:description "Restop date Elexacaftor/tezacaftor/ivacaftor indicates the date when Elexacaftor/Tezacaftor/Ivacaftor therapy was again stopped or restopped for the patient."@en . a ; "date"; "DT_ELEXTEZIVA_START_3"@en; "Restart2 date Elexacaftor/tezacaftor/ivacaftor"@en; ; dcterms:description "Restart2 date Elexacaftor/tezacaftor/ivacaftor indicates the date when Elexacaftor/Tezacaftor/Ivacaftor therapy was restarted for the patient a second time."@en . a ; "number"; "CD_ELEXTEZIVA_CONTNG_3"@en; "Elexacaftor/tezacaftor/ivacaftor restarted2 ongoing"@en; ; dcterms:description "Elexacaftor/tezacaftor/ivacaftor restarted2 ongoing indicates whether the patient is undergoing the second restarted Elexacaftor/Tezacaftor/Ivacaftor therapy on 31/12 of the year of collection."@en . a ; "date"; "DT_ELEXTEZIVA_STP_3"@en; "Restop2 date Elexacaftor/tezacaftor/ivacaftor"@en; ; dcterms:description "Restop2 date Elexacaftor/tezacaftor/ivacaftor indicates the date when Elexacaftor/Tezacaftor/Ivacaftor therapy was stopped or restopped for the patient for the second time."@en . a ; "string"; "CD_ELEXTEZIVA_STP_REAS_3"@en; "Reason for restop2 Elexacaftor/tezacaftor/ivacaftor"@en; ; dcterms:description "Reason for restop2 Elexacaftor/tezacaftor/ivacaftor provides the reason or cause for the second stop or restop of Elexacaftor/Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_SWEAT_PRE_ELExTEZIVA"@en; "Date of sweat test done before initiation Elexecaftor/Tezacaftor/ivacaftor"@en; ; dcterms:description "Date of sweat test done before initiation Elexecaftor/Tezacaftor/ivacaftor indicates the date when a sweat test was conducted before initiating Elexacaftor/Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "number"; "MS_SWEAT_PRE_ELExTEZIVA"@en; "Chloride before initiation Elexecaftor/Tezacaftor/ivacaftor"@en; ; dcterms:description "Chloride before initiation Elexecaftor/Tezacaftor/ivacaftor indicates the chloride level measured in the sweat test conducted before initiating Elexacaftor/Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "date"; "DT_CFTR_OTH_START"@en; "Start date other CFTR modulating therapy"@en; ; dcterms:description "Start date other CFTR modulating therapy indicates the date when other CFTR modulating therapy was initiated for the patient."@en . a ; "number"; "CD_CFTR_OTH_CONTNG"@en; "Other CFTR modulating therapy ongoing"@en; ; dcterms:description "Other CFTR modulating therapy ongoing indicates whether the patient is undergoing other CFTR modulating therapy on 31/12 of the year of collection."@en . a ; dcat:keyword "data collection definition"@en, "post-treatment"@en; , , , , , , , , , , , , , , , , , , , , ; dcterms:title "BCFR - Post-treatments | DCD"@en . a ; "date"; "date_best_posttransp_lungfx_1"@en; "Date best post-transp LungFx 1"@en; ; dcterms:description "Date best post-transp LungFx 1 is the date when the best recorded post-transplant lung function test (first occurrence) was conducted for the patient."@en . a ; "date"; "DT_SWEAT_POST_TEZIVA"@en; "Date of sweat test done after initiation Tezacaftor/ivacaftor"@en; ; dcterms:description "Date of sweat test done after initiation Tezacaftor/ivacaftor indicates the date when a sweat test was conducted after initiating Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "number"; "MS_SWEAT_POST_TEZIVA"@en; "Lowest chloride after initiation Tezacaftor/ivacaftor"@en; ; dcterms:description "Lowest chloride after initiation Tezacaftor/ivacaftor indicates the lowest chloride level measured in the sweat test conducted after initiating Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "number"; "weight_best_posttransp_lungfx_1_kg"@en; "Weight best post-transp LungFx 1 (kg)"@en; ; dcterms:description "Weight best post-transp LungFx 1 (kg) represents the weight measured during the best recorded post-transplant lung function test (first occurrence) for the patient, in kilograms."@en . a ; "date"; "DT_SWEAT_POST_ELExTEZIVA"@en; "Date of sweat test done after initiation Elexecaftor/Tezacaftor/ivacaftor"@en; ; dcterms:description "Date of sweat test done after initiation Elexecaftor/Tezacaftor/ivacaftor indicates the date when a sweat test was conducted after initiating Elexacaftor/Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "number"; "MS_SWEAT_POST_ELExTEZIVA"@en; "Lowest chloride after initiation Elexecaftor/Tezacaftor/ivacaftor"@en; ; dcterms:description "Lowest chloride after initiation Elexecaftor/Tezacaftor/ivacaftor indicates the lowest chloride level measured in the sweat test conducted after initiating Elexecaftor/Tezacaftor/Ivacaftor therapy for the patient."@en . a ; "number"; "height_best_posttransp_lungfx_1_cm"@en; "Height best post-transp LungFx 1 (cm)"@en; ; dcterms:description "Height best post-transp LungFx 1 (cm) represents the height measured during the best recorded post-transplant lung function test (first occurrence) for the patient, in centimeters."@en . a ; "number"; "fvc_best_posttransp_lungfx_1_l"@en; "FVC best post-transp LungFx 1 (l)"@en; ; dcterms:description "FVC best post-transp LungFx 1 (l) represents the Forced Vital Capacity measured during the best recorded post-transplant lung function test (first occurrence) for the patient, in liters."@en . a ; "number"; "fev1_best_posttransp_lungfx_1_l"@en; "FEV1 best post-transp LungFx 1 (l)"@en; ; dcterms:description "FEV1 best post-transp LungFx 1 (l) represents the Forced Expiratory Volume in 1 second measured during the best recorded post-transplant lung function test (first occurrence) for the patient, in liters."@en . a ; "date"; "date_best_posttransp_lungfx_2"@en; "Date best post-transp LungFx 2"@en; ; dcterms:description "Date best post-transp LungFx 2 is the date when the best recorded post-transplant lung function test (second occurrence) was conducted for the patient."@en . a ; "number"; "weight_best_posttransp_lungfx_2_kg"@en; "Weight best post-transp LungFx 2 (kg)"@en; ; dcterms:description "Weight best post-transp LungFx 2 (kg) represents the weight measured during the best recorded post-transplant lung function test (second occurrence) for the patient, in kilograms."@en . a ; "number"; "fev1_best_posttransp_lungfx_2_l"@en; "FEV1 best post-transp LungFx 2 (l)"@en; ; dcterms:description "FEV1 best post-transp LungFx 2 (l) represents the Forced Expiratory Volume in 1 second measured during the best recorded post-transplant lung function test (second occurrence) for the patient, in liters."@en . a ; "number"; "height_best_posttransp_lungfx_2_cm"@en; "Height best post-transp LungFx 2 (cm)"@en; ; dcterms:description "Height best post-transp LungFx 2 (cm) represents the height measured during the best recorded post-transplant lung function test (second occurrence) for the patient, in centimeters."@en . "Sample Profile" .